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LifeSharers promotes organ donations

Update 7:00 am

On the web
=95 LifeSharers: Organs for Organ = Donors

ABOUT ORGAN DONATION

Most organ donors are people who suffer from a head injury that = results in=20 brain death.

Brain death is a condition where the brain permanently stops working. = These=20 may be people who have had a stroke, traumatic head injury because of a = car=20 accident or fall, or a brain tumor that has not metastasized. Brain = deaths=20 account for about 1 percent to 2 percent of all deaths of patients in=20 hospitals.

People may not pay for organs. Exchanging money for organs was = outlawed in=20 1984 by the National Organ Transplant Act.

Sources: Organ Procurement and Transplantation Network, New York = Organ=20 Donor Network

ABOUT LIFESHARERS PROGRAM

There is no cost to join LifeSharers, and no medical tests are = required.=20 Prospective members fill out a form and notify their family members of = their=20 intentions.

LifeSharers has 4,391 members, including more than 300 children. Six = people=20 from Delaware are part of LifeSharers.

To find out more, call (888) ORGAN88 or visit http://www.lifesharers.org/.

Frequently asked questions about LifeSharers:

Is anyone barred from joining LifeSharers due to any pre-existing = medical=20 condition?

No.

Does joining LifeSharers commit me to donating tissue or to = donating my=20 body?

No.

Don't LifeSharers members accept organs from everyone but = preferentially=20 restrict their donation to fellow members?

LifeSharers members will give their organs to anyone, and they'll = give them=20 first to anyone who is willing to do the same for them. Nonmembers can = have=20 members' organs if no fellow member who needs them is a suitable = match.

Is there a waiting period before a LifeSharers member can get = first access=20 to the organs of other LifeSharers members?

Yes. LifeSharers members do not qualify for first access to organs = from other=20 LifeSharers members until they have been a member for 180 days. This = waiting=20 period encourages people to join while they're still healthy. It = discourages=20 people from waiting to join only when they find out they need an = organ.

Source: LifeSharers

By KELLY BOTHUM
The News Journal

05/23/2006

Dave Undis wants your organs.

Not for him, but for his growing network of organ donors.

Undis is executive director of LifeSharers, a nonprofit program that = aims to=20 boost the number of organ donors nationwide. It works by promising those = who=20 join that they have preferred access to organs donated by other members = when=20 they die. To date, 4,391 people have become members of the free = LifeSharers=20 program, including six in Delaware.

LifeSharers is a form of directed organ donation, and it's legal in = all 50=20 states. Proponents of the program say it encourages more people to = donate their=20 organs because there's a direct benefit to them.

"Every year, people die waiting for organ transplants," Undis said. = "If you=20 had to be a registered organ donor to be eligible for organ donation, = everybody=20 would be an organ donor."

Just over half of the U.S. population (55 percent) has agreed to = donate their=20 organs in the event of their death. In Delaware, 52 percent of drivers = are=20 registered as organ donors.

There are more than 92,000 people awaiting organ transplants in the = United=20 States, according to the Organ Procurement and Transplantation Network, = which=20 maintains a database on patient waiting lists. Last year, more than = 6,500 people=20 died waiting for organ transplants.

Undis believes his program works because it is more fair than the = traditional=20 way of doling out organs. The United Network of Organ Sharing, which = manages the=20 nation's transplant lists and oversees distribution of deceased donor = organs,=20 does not take into consideration whether patients in need of transplants = are=20 organ donors themselves.

"If you give an organ to an organ donor, you get more organ = donations," he=20 said.

Undis, of Nashville, Tenn., was trying to figure out what to do after = retiring from his job as an insurance broker in 2002 when he became = interested=20 in the plight of thousands of people who die each year while waiting for = hearts,=20 kidneys, livers and and other organs. Although he had no medical = background, he=20 decided to do something about the problem.

And so, LifeSharers was born.

Members join the program by agreeing to donate their organs at death. = They=20 also promise to give preference to other members who may need those = organs. In=20 turn, they also get first crack at available organs should they need a=20 transplant.

The organization keeps a list of members in need of organ = transplants. Right=20 now, there are 23 LifeSharers members on the national waiting list for = an organ=20 transplant, Undis said.

If a member who is eligible to donate dies, the family of the = deceased member=20 will be given a list of members to direct organs to. If the organs of = the=20 deceased LifeSharers members are not found to be a suitable match to = another=20 LifeSharers member, they are still donated for transplantation.

No member of the LifeSharers program has yet died in a way that could = make=20 their organs usable, Undis said.

Undis said as more people register as organ donors, fewer people will = die=20 waiting for transplants. A program like LifeSharers also helps to get = people=20 talking about organ donation, a topic few like to broach.

"Organ donation is an uncomfortable thing to think about. Many people = think,=20 'There's nothing in it for me,' " he said. "We're giving people good = reason to=20 register as organ donors."

Undis said a frequent criticism his group gets is that it's not fair = for=20 people who are in need of organ transplants but aren't organ donors = themselves.=20 But he thinks that view is misguided. He believes that people who aren't = willing=20 to share what he calls "the gift of life" -- their organs -- shouldn't = be=20 eligible for transplants as long as there is a shortage of available = organs.

Art Caplan, chairman of the Center for Bioethics at the University of = Pennsylvania, said there are many challenges facing a program like = LifeSharers.=20 One hurdle is the size of the program, which he said is too small to = increase=20 your chances of getting a needed organ for transplantation. Nearly = everyone in=20 the United States would have to be a member in order to increase the = likelihood=20 of finding a match between two members.

"There's nothing wrong with trying to encourage people to donate = organs by=20 giving them an incentive," said Caplan, who has written extensively = about organ=20 transplant issues. "But you don't know if any person in the group will = be a=20 match. It's hard to promise a match because of the biological = differences."

Like other critics of the program, Caplan also sees issues of = inequity=20 associated with a preferred network of organ donors. Some groups of = people, such=20 as the homeless or mentally ill, would be difficult to get registered as = organ=20 donors.

Undis said LifeSharers can't guarantee that a LifeSharers member's = organs=20 will go to someone else in LifeSharers. And he doesn't want the = organization to=20 be an exclusive group -- he'd like to see as many people join as = possible. That=20 way, he said, there are more organs available for those who need = them.

Susan Stompf's Delaware driver's license identifies her as an organ = donor.=20 She's adamant about making her organs available to other people when she = dies.=20 She wants other people to become organ donors, too.

That's why the Lewes woman joined LifeSharers. She hopes to be the = first=20 organ-donation domino to fall among her friends and family. After she = signed up,=20 she sent information about the program to 20 friends and family trying = to=20 convince them to become members as well. Undis said word-of-mouth is the = best=20 advertisement the group has.

Sharing details of the program was also a way for Stompf to talk with = her two=20 grown sons, who live in Pennsylvania, about whether they would donate = their=20 organs if they died. Although the possibility of them dying isn't = something the=20 51-year-old mother wants to think about, she did want them to consider = donating=20 their organs.

Her 33-year-old son surprised her by telling her he was already = registered as=20 an organ donor through his driver's license registration in = Pennsylvania. Like=20 his mother, he opted to join LifeSharers, too.

She doesn't focus on the preferential treatment she might receive as = a member=20 of LifeSharers. For her, it's about making a difference.

"If you are needing an organ, they'll share it with you," said = Stompf, who=20 knows two people who are alive today because they received transplants. = "But=20 it's not that I expect to get one. It wasn't my reason for joining. We = just have=20 to be able to share what we have."

Contact Kelly Bothum at 324-2962 or kbothum@delawareonline.com= .

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Copyright =A9 , The News Journal. Use of this site signifies your agreement to = the Terms=20 of Service and Privacy=20 Policy (updated 10/3/2005)=20

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LifeSharers promotes organ donations

By KELLY BOTHUMThe News Journal

05/23/2006

By KELLY BOTHUM
The News Journal